With Valentine’s Day putting red hearts front and center, I figure it’s as good a time as any to share my own story of an ailing heart. Back in 2006, I made a routine doctor’s appointment to check out a lingering cold. I just couldn’t shake a cough and sore throat and expected the doctor to send me packing with antibiotics, as he typically did. Instead, he listened to my heart and determined that I had a slight murmur. It was probably nothing, he said, and went on to do an Echocardiogram, finding that I had a leaky valve somewhere in there. This was Sept. 11, 2006, a date I considered ominous enough without the added burden of some brewing heart issue.
Being one to brush off ailments and generally be mistrustful of doctors, I thought nothing of all the fuss over a heart murmur. I mentioned, in passing, to my husband that the doc wanted me to go in for a CT scan, basically a fancy, detailed x-ray where they feed dye into the body to get a cross sectional image. The doctor just wanted to be sure the leaking valve was something minor and manageable. A lot of young, slim women apparently suffer from something called mitral valve prolapse, where one of the heart’s valves doesn’t close properly, without it ever causing any problem. That was the diagnosis he foresaw for me.
Worst Case Scenario
Instead, there were hushed conversations and panicked phone calls hours after I had the CT scan. The doctor had me booked for stress tests and a cardiac catheterization in the weeks ahead; there was a risk that not only did I have a leaking valve but it appeared I may have an aortic dissection that if aggravated could rupture to cause internal bleeding and at worst, death. The way he put it: “If it’s what it looks like, you should be dead. Lifting your children or carrying the stroller upstairs, you could just bleed out.”
My husband was livid. Frustrated and dissatisfied that I was booked to see specialists in a matter of weeks, he made a bunch of calls and came up with the name of a cardiologist at New York Presbyterian Hospital who dealt with cases such as mine. I rang her immediately and was told she was traveling; minutes later, apparently unnerved by the details I had left with her assistant, the cardiologist rang me from the airport. She pulled no punches. If what I told her was accurate, I needed to go straight to the emergency room where she would have a cardio team waiting.
You have to understand, I was at my son’s preschool to pick him up at the time. My son was three and my daughter just 16 months old and still breastfeeding. I had none of my family close-by or even aware of what was going on, and my in-laws, who came from Long Island to help, had never even spent the night with our children, let alone looked after them daily and in a time of crisis. I don’t remember much of what happened next, except that a neighborhood mommy and now very good friend stepped in and took the children home, while I collected myself, rang my husband in tears and literally ran from Cobble Hill to downtown Brooklyn to collect x-rays to take with me to the hospital.
That evening, my husband drove me to the ER, where I presumed I would wait for hours amid true emergencies for someone to see me. Instead, a posse of men and women in white coats sprang into action, studying me and my story over and over and over again. Indeed, I had a thoracic aortic aneurysm; and yes, I should have been dead like so many other young people I have since heard of who just keeled over with the same condition. There were no symptoms, no family history, and no explanations for why I had this or for how long I had it. It was decided that — at just 37 years of age and with no noteworthy medical history — I would have open heart surgery the next day to patch the aneurysm and replace my leaking valve with an artificial one. At this stage, I still hadn’t told my family anything was wrong, leaving that horrible task to my already stricken husband.
My only real recollection through any of it was being wheeled into the operating theater in tears after having to remove my wedding and engagement rings, which I never take off. That’s when I asked the surgeon if I would see my kids again, a notion that until then I hadn’t contemplated. It had all happened so quickly and so extremely, it was almost an out-of-body experience.
I woke in the intensive care unit with my husband nearby and tubes coming out of my arms and mouth and nose. I was medicated to the eyeballs, so it wasn’t until a day or two later that I even realized how sore I was. The surgery had been a success and besides a whopping great scar down my front and taking blood thinners for the rest of my life, all seems to be well now. There’s still no explanation for how this happened; no family history; no warning signs — I am something of a freak case and as such, am now part of a research study into unexplained thoracic aortic aneurysms.
When I bare my scar, as is inevitable in just about anything I wear, I get plenty of double-takes from people wondering what happened, especially my children’s friends, who ask why that mommy has a big boo-boo. One very hot day last summer, I had beige-colored surgical tape over the scar to avoid it burning; an old woman on a lawn chair outside her Brooklyn home stopped me to ask if it was “the patch.” I never figured out if she meant a birth-control patch or one to quit smoking, either way it amused me. I could cover-up the scar I guess, but why?
Interestingly, as the American Heart Association promotes the Go Red for Women campaign and even Project Runway gets in on it, charging designers with the task of making runway worthy red dresses for women who have been affected by heart disease, I forget that I am one of those women. It was just 15 days between that first doctor visit and the surgery September 26, 2006. The entire process seems surreal, a bit like childbirth I guess, where you forget the agony just enough to contemplate doing it over again.
I rarely wear color but maybe this Valentine’s Day I’ll slip something red over the black New Yorker uniform, and celebrate that my ticker is fit and well.
10 thoughts on “Bleeding Heart”
Congratulations Lee! I especially like your latest entry. It seems so “real” to have it all in print. Happy Valentine’s Day takes on a whole new meaning.
I’m glad you wrote this since I never really knew the story in full. I’m crying buckets here reading this. I can’t imagine how it must have felt. But you are doing beautifully now thank God. Moments like these you find who your real friends are and you found many..that’s a blessing:)
Lee, many of us take health and family for granted. When I read your story it makes me think how lucky I am as a 51 year old mother and wife to have been there for my three children and husband. I am very fortunate that I have had good health and be there for them.
Your story was written beautifully and I must say my eyes are full of tears just thinking about what you must have gone through.
You are truly an amazing person, good luck to
dear lee, what a beautiful story. i was so touched by by your experience i had a lump in my throat. you have managed to convey every moment so realistically in your writing. you are a very lucky girl and someone from above must have intervened. best wishes to you and your beautiful family.
Lee: I’d heard an abbreviated version of this tale before and still it’s shocking to read. Miraculous too. A few comments/questions:
1) The cardiologist who called from the airport was a saint, truly; her response really illustrates “the power of one” idea. 2) I wish you hadn’t run to pick up the x-rays. 3) I’m very inspired by the neighborhood mom who took your kids; I’d like to be the kind of person who steps up to do the necessary thing like that, though I’m not sure it comes naturally to me. 4) How did the surgeon answer when you asked him if you’d see your children again? Just wondering how a person gracefully (or not) fields that one.
Kate, to answer your final question, I don’t remember clearly what the surgeon said when i asked if I would see my children again. From the little I can recall as I was going under, he gave a comforting nod and squeezed my hand. I read that as a yes, but figured he was bound by some oath not to make promises he wasn’t certain he could keep!
Very short, simple and easy to understand, bet some more comments from your side would be great
Wow….I had no idea. I am very glad you are healthy and able to go out and about. Stay healthy and keep writing. Moving story.
Wow, what a life experience…and no doubt another reason why the loss of the concierge in your building at a young age would have touched you so. You were very lucky to have had this spotted. It’s lovely to see you looking so vital and well today. Its a reminder to everyone to truly live every day … to hug your kids lots … and to say hi to your neighbours…